Tove Harnett
Associate professor, PhD Gerontology
Feeling controlled or being in control? Apps for self-management among older people with neurological disability
Author
Summary, in English
Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.
Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.
Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.
Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.
Implications for rehabilitation
Apps can be used for self-management if they are safe and can be trusted.
People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals.
The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches.
Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes.
Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.
Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.
Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.
Implications for rehabilitation
Apps can be used for self-management if they are safe and can be trusted.
People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals.
The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches.
Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes.
Department/s
- Active and Healthy Ageing Research Group
- School of Social Work
- Certec - Rehabilitation Engineering and Design
- Law and Vulnerabilities
- Norma Research Programme
- Health Law
- Public Law
- Department of Law
Publishing year
2021
Language
English
Pages
603-608
Publication/Series
Disability and Rehabilitation: Assistive Technology
Volume
16
Issue
6
Full text
- Available as PDF - 975 kB
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Document type
Journal article
Publisher
Taylor & Francis
Topic
- Law
- Public Health, Global Health, Social Medicine and Epidemiology
Keywords
- Elder law
- Äldrerätt
Status
Published
Research group
- Active and Healthy Ageing Research Group
- Law and Vulnerabilities
- Norma Research Programme
- Health Law
- Public Law
ISBN/ISSN/Other
- ISSN: 1748-3115